We asked -- and hundreds of you answered -- how you pass the time during long treatments. Check out what the CF community told us when we asked what makes you #morethanCF.
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It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
Our daughter's airway clearance treatment with the vest went more smoothly after we learned a few tricks.
I struggled emotionally after learning that after negative carrier and newborn screens, my son had cystic fibrosis. I’m now advocating for people with rare mutations.
My son, who is Black, has cystic fibrosis. It seems like just a normal fact of life, but I have become frustrated with having to convince doctors that he really does have CF. I hope that one day people of color won’t have to have the same experience.
I felt so alone as a kid being gay and having CF — there weren’t any role models in the 80s and 90s that I could look up to. Eventually, I found people who understood what I was going through and that helped me feel good about who I was, and who I am today.
After years of being treated as an oddity, I want people to acknowledge that I am a Black girl with cystic fibrosis. I want my voice to be heard.
I went through my first surgery recently. I want to share what I learned during my recovery.
I've found an airway clearance routine that works for me by relying on knowledge of my body and breath control, combining conventional airway clearance with yoga breathing techniques.
When our daughter was diagnosed with cystic fibrosis, all I could think about was walking into that first CF clinic appointment and walking out with “the vest.” Although transitioning to the vest was the change I feared the most, it's been a welcome change to our once-difficult routine.