With promising new discoveries in the pipeline and advancements we've made in the search for new treatments and a cure, we must continue our work to protect access to adequate, affordable insurance that preserves access to high-quality cystic fibrosis care; and support progress toward new therapies and a cure.
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Robust funding for the National Institutes of Health helps ensure innovation in basic research and a full pipeline of cystic fibrosis therapies. A well-resourced U.S. Food and Drug Administration helps advance therapies that are safe and effective.
In a complex and rapidly changing health care system, we support policies that promote adequate, affordable health coverage so people living with cystic fibrosis can receive the high-quality, specialized care they need to live longer, healthier lives.
Recent therapeutic advances have transformed cystic fibrosis — adding decades of life and new hope for people living with this disease. To protect this progress, it's critical that people with CF can access high-quality, specialized treatments and care, regardless of income, insurance, or geography.
Germs can spread in a number of ways, but the most common are by direct and indirect contact and through the air.
MRSA stands for methicillin-resistant Staphylococcus aureus. The bacteria can cause an infection on the skin and in the lungs. It is resistant to several common antibiotics. But MRSA can be treated with some antibiotics, nose drops, and other therapies.
Nontuberculous mycobacteria are a group of bacteria that live in soil, swamps, and water sources.
Influenza, or “the flu,” is a highly contagious respiratory illness that is caused by a virus. For people with cystic fibrosis, getting the flu may cause a worsening of symptoms and lead to a faster decline in lung function.
The faulty gene that causes cystic fibrosis disrupts the normal flow of salt and water in and out of the lungs and other organs. This salt imbalance results in thick, sticky mucus that builds up in the lungs, allowing germs to thrive and multiply.
By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our archived state and federal statements, letters, and regulatory comments from 2018–June 2023.