Palliative care guidelines provide recommendations to help reduce physical and emotional symptoms and improve quality of life for people with cystic fibrosis throughout their lives.
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There is no consensus on the best model of care for individuals with CF to manage the non-pulmonary complications that persist after lung transplant. This position paper outlines two models of post-transplant care to accomplish optimal CF care after transplant.
These consensus statement recommendations were developed to help guide optimal care for children and adults with CF with otolaryngologic (ear, nose, and throat) disease.
HM Insurance Group (HM) raises nearly $40,000 through sharing the emotional 65 Roses® story and selling roses at their national sales conference.
CARSTAR was recognized as a National Corporate Champion and was presented the Rising Star Award at the 16th annual Volunteer Leadership Conference in San Diego.
For the second year, Mastercard® becomes the Greater New York Chapter's top corporate sponsor thanks to two senior-level executives personally affected by cystic fibrosis who initially connected employees to the mission of the Cystic Fibrosis Foundation.
Choate Construction's 9th annual Cars & 'Q for the Cause raised over $435,400 for the Cystic Fibrosis Foundation, serving as a role model for corporations looking to integrate philanthropy into their business model.
Nutritional support is a vital component of care for patients with cystic fibrosis. These recommendations cover caloric intake, dosing for pancreatic enzyme replacement therapy, and monitoring growth in childhood and weight status in patients of all ages.
These guidelines were developed by consensus based on expert opinion and a medical literature review to guide the monitoring and care of infants who have an abnormal cystic fibrosis newborn screening result, but do not meet the full criteria for a CF diagnosis.
To help inform the standard of care delivered at accredited care centers, the CF Foundation brings together committees of subject matter experts to write guidelines on topics related to the care of people with cystic fibrosis. Committee members include doctors, nurses, respiratory therapists, dietitians, social workers and people with CF and their families.