As an adult with cystic fibrosis, I know I am blessed to be healthy right now. I find joy in spreading awareness of CF and encouraging others to follow their dreams no matter what.
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I always say that when life gives you lemons … turn around and write some Japanese-style poetry. I hope you enjoy these haikus I have written about life with cystic fibrosis.
Tara Goodwin
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2 min read
To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.
Bianca Maldonado-Dequin
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4 min read
Take it from me, dating with cystic fibrosis can be hard — from not having the energy to keep up with our partners to dealing with all the not-so-sexy aspects of the disease. But it’s important to not settle for anything less than the love and support we deserve.
Sydney Reichart
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10 min read