Kids can be picky eaters. When you have a child with CF and the nutritional stakes are higher, you may need some creativity to keep them interested.
Site Search
I never realized how important it was to share my family's story of cystic fibrosis until I started participating in Teen Advocacy Day. This experience helped me find my voice.
It wasn't until I got some perspective that I realized that when I rebelled against my cystic fibrosis treatment plan, I was rebelling against myself.
For the longest time, I did all I could to deny that I had cystic fibrosis. Eventually I came to own my CF.
Having a spouse with cystic fibrosis can leave you focusing too much on their health and not your own. My weight loss journey taught me that even if it's not about him, it's not about me, either. It's about us.
Reflecting the continued momentum we're making in the fight against cystic fibrosis, the latest Patient Registry data show steady gains in survival for people with CF. With this good news comes a lot of excitement, along with some questions.
I went through a roller coaster of emotions after my child was diagnosed with cystic fibrosis. One of the most important lessons I learned is that I had to take care of myself first so I could take care of my daughter.
How much are you willing to do for a loved one? The answer is simple: anything and everything, right? We advocate for them, make sacrifices to be with them and worry about them constantly. Last year I did all of this, but -- somehow -- still felt pangs of guilt.
Many of the people I thought I could count on disappeared during a period when my health declined. Losing those people helped me discover that my real support network was made of the friends who stuck around and those I have met since.
According to social worker Kim Reno, removing critical health care protections in current law would be devastating for people with cystic fibrosis and their families.