I was diagnosed with cystic fibrosis late; and the anger I felt was contagious for my son, who was dealing with his own diagnosis. But, I found support and am now focusing on the things in my life that I can control.
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Addressing variability in newborn screening can prevent missed diagnoses and delays in early care intervention.
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I had no idea what cystic fibrosis was — or that I had it — until six months of pancreatitis led to a diagnosis.
Spencer Barber