I used the Cystic Fibrosis Foundation Patient Registry Annual Data Report to ask my care teams questions to more effectively manage my CF. You can, too.
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Recipients include five innovative programs from around the country that empower the CF community.
The Cystic Fibrosis Foundation presented five outstanding members of the CF community with awards at the 2019 Volunteer Leadership Conference. These included the Tomorrow's Leader Award, the Jena Award, the Alex Award, and the Dream Big Award.
Hear about our homepage hero, Jeremy Weyandt, and his journey to a lung transplant.
The latest trends in the health of people with cystic fibrosis who participate in the Patient Registry have been published in the 2017 Patient Registry Highlights Report.
A decade of strategic efforts to improve care has played a profound role in improving the quality and length of life for people with cystic fibrosis in the United States, according to a series of reports published in the April issue of BMJ Quality & Safety (formerly the British Medical Journal).
The Woods family, currently featured on the homepage of CFF.org, share their favorite part of Great Strides walk day, their proudest moments as parents of a child with CF, and more.
The Egan family, currently featured on the homepage of CFF.org, share more about their sassy little girl, how much their support system means to them, and what inspires them in the search for a cure for cystic fibrosis.
Members of the cystic fibrosis community can have an even greater say in research when they vote for the Insight CF questions they most want answered. Readers have until June 21 to vote.