Researchers are exploring treatments that will keep people with cystic fibrosis as healthy as possible until a cure is found. In the first plenary at the NACFC, two CF scientists explain the progress of current research.
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Learn how Rachel Kinney fits studying for a computer science major, an active social calendar and daily cystic fibrosis treatments into her life.
Our next “Living Today” video features Jordan Scott, 22, whose biggest challenge involves gaining weight. But through her love of studying nutrition, she's been able to overcome her fear of the inevitable: a feeding tube.
Dr. John P. Clancy shares new developments in drugs that restore airway surface liquid in the lungs of people with cystic fibrosis, making it easier to clear mucus.
The Cystic Fibrosis Foundation is funding research into gene editing techniques to see if they can be used to fix the mutations that cause cystic fibrosis. One of the most popular techniques is CRISPR-Cas9. To see how this might work for CF, watch this video.
Ever wonder about an aspect of cystic fibrosis that you would love someone to research? Find out how you can submit a question in our first community-driven research project.
In the third plenary, Dr. Wayne Morgan talked about the connection between cystic fibrosis care and the Patient Registry, and introduced a new way for people with CF, along with their families, to help shape the research conducted using the Registry.
No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.
Last August, I watched all of my friends head off to school and all of a sudden I was the only one left still living at home. I hadn't even graduated high school, but I was getting to experience the time-honored and popular British tradition of a taking a gap year.