Although I don’t consider having a chronic illness like cystic fibrosis a good thing, I accept it and I think others should, too.
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Encuentra respuestas a preguntas sobre la pandemia del COVID-19 mientras vives con fibrosis quística.
Having to isolate from our loved ones after the birth of our first child -- right as the COVID-19 outbreak hit our community -- was doubly difficult, but with a little education, our support network came through for us.
As a community, we are very good at masking and keeping a safe distance to reduce risk from germs. And just like we have highly effective therapies to treat CF, we now have highly effective vaccines to protect our kids from COVID-19.
Because of the COVID-19 outbreak, millions of Americans, including those living with cystic fibrosis and their families, are facing tough decisions around employment. The issue of paid leave and its eligibility is emerging as a top concern for people with CF and working members of their family.
Regular CF care center visits are important to maintain your health. The following tips are intended to help you make informed decisions to protect yourself and others from catching and spreading germs while at a care center visit, in the hospital or in any other health care setting.
My service dog, Jasper, and I relocated across the country and began to find our footing in our new home just before devastating forest fires started spreading around the area. Now, I feel more grateful than ever for the irreplaceable things in life, like Jasper.
Raising three kids in daycare often involves runny noses and mystery stains. As a mom with CF, I’ve figured out how to balance our daily lives with keeping me healthy and daycare-germ free.
During COVID, it became apparent who in our lives supported the decisions we made for my wife’s health.