After my son was diagnosed with cystic fibrosis, I knew that I wanted to connect with other CF families. Fortunately, I've been able to find a group of moms who understand what my life is like and help me cope.
Site Search
As a mother of two children with cystic fibrosis, I am glad to hear that the Cystic Fibrosis Foundation is launching the Infection Research Initiative to address the chronic infections that dramatically impact the lives of people with CF.
I am grateful that I can run and work out at the gym even though I have cystic fibrosis. Still, I can't help feeling guilty that others with this disease are struggling, and it's hard to shake the feeling that one day it could be me.
I dreaded transitioning from my pediatric care center to my adult care center. I was stubborn and knew that I did not want to go. I thought I knew best, that is, until one phone call changed my entire perspective.
On my first international trip, I found myself in an interrogation room explaining my port to security officers.
As someone with cystic fibrosis, Lynch Syndrome, and CF-related diabetes, preparing for a colonoscopy can be a challenge. Fortunately, I've become very well-versed in how colonoscopies work and how to prepare for them over the past 10 years.
Although your teenage years can be difficult, they ultimately help mold you into the person you are meant to be -- especially when you have a chronic disease, like cystic fibrosis.
After my last hospitalization, I faced new challenges and issues related to my cystic fibrosis -- including panic attacks and supplemental oxygen. Although it's been difficult adjusting to my “new normal,” I am slowly learning how to cope with the uncertainties of my disease.
Being able to work a full-time career has always been my badge of honor, a way to show that cystic fibrosis does not control -- or limit -- my destiny. Yet, after 37 years of accomplishments, I still feel guilty when I need to miss work for health reasons. Is it possible to have it all when you have CF?
When my daughter was diagnosed with cystic fibrosis as a newborn, I was shattered. But then, I decided I would raise her to know that CF was something she had, not who she was.