As a member of the IT department at the CF Foundation, it's easy to sometimes feel disconnected from the people we serve. This is why the Foundation's Speaker Series, which recently featured the story of Sara and Michael Dun, is so meaningful.
Through a new Speaker Series, the Foundation invites people with cystic fibrosis and their families to the national office to share their stories and help Foundation employees better connect with members of our community.
Dana Handler, an intern with the Foundation's advocacy team, recounts her experience and explains her renewed confidence that we'll find a cure for cystic fibrosis.
As we look forward to 2018, our President and CEO, Preston W. Campbell, III, M.D., shares a special holiday message to the cystic fibrosis community.
With the opportunity to broaden our scope, we are opening up everything we do to people living with CF -- and we want to hear from you.
For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.
When we set out to create the Foundation's new website, there was a lot we wanted to accomplish. Our goal was a modern, visually compelling CFF.org that provides more helpful information for the millions of people who visit each year. But we wanted to do something much more, too.
As we reflect on 2016, we are so thankful to our friends around the country, dedicated researchers, care center professionals, volunteers and, most of all, those of you living with CF.
The top 10 most-read blog posts of 2016 cover a range of topics and demonstrate the diversity of the cystic fibrosis community.
As I join the Foundation as chief operating officer, I look forward to taking the time to hear as many community voices as I can, to learn from all you have done and to engage to help do my part.