Deciding what activities are safe enough for my family has been daunting during this pandemic. But with CF, I'm reminded that I've been doing this for years and I'm grateful for a tool to help me think through my decisions and make the best choices for my family.
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Thanks to COVID-19, a work furlough forced me to slow down the pace of my life and I'm okay with that. Here's how I've let go of needing to be productive during this time.
The recent birth of my son brought me news that I never expected -- a diagnosis of cystic fibrosis.
COVID-19 presented all of us with a great deal of uncertainty. Fortunately, several sessions at the North American Cystic Fibrosis Conference helped provide some data -- and some relief.
I'm a big proponent of participating in clinical research, but COVID-19 made me think twice about participating in a clinical trial that required six hospital visits. However, a screening visit reassured me that the researchers were taking all the necessary precautions.
In the fourth installment of our “Ask a Case Manager” series, we discuss what you should consider when making the transition from high school to college.
As a high school nurse, I've worked hard over the last few years to help my three students with CF navigate school safely. A welcome but unexpected change to my plans was helping one of my students get her very own service dog, Rosie.
Because of the threat to my health caused by COVID-19, I had to give up my dream job as a nurse practitioner. Now I am asking for paid leave expansion.
The pandemic made me a homeschool teacher last spring. After deciding we would continue homeschooling our kids this fall, we agreed we needed to shake things up. Gone was the cluttered kitchen table where we were doing lessons before, and in its place is a “classroom” we made in our garage.
Summer 2020 is simply not like the others. For me, a teacher and CF spouse, the unknown is taking away some of the normal summer bliss. But it's been hardest on my husband who feels he is holding us back as stores and restaurants gradually reopen.