Medicare can be a nuanced program to understand. Knowing the basics on what makes you eligible, and when to sign up can help.
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The Cystic Fibrosis Foundation made a strategic commitment to develop a multi-pronged approach to help people with cystic fibrosis stick with their treatment plans called Partnerships for Sustaining Daily Care (PSDC). Learn more about this initiative and how you can get involved.
Because cystic fibrosis is a complex disease, it requires a team approach with you or your child at the center. Your CF care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Teams of dedicated health care professionals in a nationwide network of more than 130 Cystic Fibrosis Foundation-accredited care centers partner with people with CF and their families to provide expert care and specialized disease management.
Understanding your insurance coverage can go a long way in helping you to anticipate your costs for things like doctor appointments, medication refills, and other services. We’ve put together the basics to help break it all down.
Medicaid can be a key resource for people with CF and their families to afford the highly specialized care they need.
Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
When I ran into a particularly difficult situation with my last job, the “d” word entered my lexicon for the first time: disability. While my life doesn't look like I thought it would, I have come to accept where I am and gained a new perspective on work and life.
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.