Learning that your child has cystic fibrosis can be overwhelming. You may feel sad, guilty, scared, or even angry, but you are not alone. We are here to help.
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The risk for colorectal cancer in adults with cystic fibrosis is 5–10 times greater than the general population, and even higher for people with CF who receive a lung or other solid organ transplant. Find out how early screening can help reduce your risk.
If you're the parent of a child with cystic fibrosis, you probably know the worry that comes along with sending your kid away to summer camp. To ensure that my own kids with CF were cared for at camp, I wrote the following letter outlining their special medical needs.
By learning about the implications of all transplant-related medications and treatments before undergoing a transplant, men with cystic fibrosis can avoid some of the harmful reproductive side effects and improve their ability to have biological children post-transplant.
Listening to my body -- and hearing what it has to say -- is not always what I want to do, but what I need to do.
Because transplant is such a complex process, most transplant centers require that candidates gather the necessary social support to help navigate the transplant process.
Want to know why getting a flu shot is so important? I ignored my early flu symptoms, which ended up spoiling the holidays and leading to an exacerbation.
Before my double lung transplant, I experienced major body aches and poor posture due to my cystic fibrosis. Here are some of the ways I found to help combat this and ease some of my pain.
As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.