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Researchers are exploring treatments that will keep people with cystic fibrosis as healthy as possible until a cure is found. In the first plenary at the NACFC, two CF scientists explain the progress of current research.

For those of us without a medication that targets our cystic fibrosis mutation, it's important to remember that our life with CF is a marathon.

This medicine represents the single greatest therapeutic advancement in the history of CF, offering a treatment for the underlying cause of the disease that could eventually benefit more than 90 percent of people with CF.  

Although I had been told that my coughing would stop, I wish I had known more about the transformative change that Trikafta^® would have on my life. It has almost made me wistful for the time when I was sick, back when I was more in tune with what my body was experiencing.

After decades of identifying myself as Monique, “the girl with cystic fibrosis,” I didn’t know who I was anymore after Trikafta changed my health for the better.

Now that I am feeling healthy on Trikafta^®, I no longer feel special for thriving despite the challenges of cystic fibrosis. I don’t feel like I belong in the CF community anymore, and I miss that sense of camaraderie that comes from a shared struggle.

The CF Foundation is focused on bringing forward new therapies to help people with CF enjoy the best health and quality of life. 

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