I may not have chosen to have cystic fibrosis, but I did get to choose my outlook on life and -- ultimately -- my perspective.
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Not having a roadmap for life wasn't a problem when I thought I wouldn't be around long enough to take the trip. A double lung-transplant has me rethinking this belief.
Although I asked for help to manage the physical aspects of my disease, it took a long time for me to feel comfortable asking for support for the emotional impact of cystic fibrosis.
I am grateful that I can run and work out at the gym even though I have cystic fibrosis. Still, I can't help feeling guilty that others with this disease are struggling, and it's hard to shake the feeling that one day it could be me.
Although your teenage years can be difficult, they ultimately help mold you into the person you are meant to be -- especially when you have a chronic disease, like cystic fibrosis.
After my last hospitalization, I faced new challenges and issues related to my cystic fibrosis -- including panic attacks and supplemental oxygen. Although it's been difficult adjusting to my “new normal,” I am slowly learning how to cope with the uncertainties of my disease.
I've learned that what I tell myself about how cystic fibrosis affects me, affects my belief in what I can achieve, and how I feel about myself as a person.
When I was younger, I thought my cystic fibrosis affected me and only me. I have begun to realize the emotional toll that CF also takes on my family and loved ones.
Cystic fibrosis may impact your health and productivity, but life doesn't stop just because you're feeling ill. Although CF can sometimes make it difficult to maintain your responsibilities, I've learned a few tricks over the past 30-odd years to stay productively motivated and take it one step at a time.
Pulmonary function tests (PFTs) are a standard component of quarterly cystic fibrosis clinic visits, but they can often cause a great deal of stress for people with CF. Here are a few strategies that I've found helpful for reducing my own PFT anxiety.