Although my lung transplant was the end of one story, it was also the beginning of another, more difficult story.
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Today I am proud to introduce More Than CF. Your struggles, your achievements, your routines and the small surprises of your every day breathe life into the Foundation's work. You can get involved by sharing your experiences with us on Facebook, Twitter and Instagram and by searching #morethanCF.
There are a lot of misconceptions about illnesses. For one, you're supposed to look sick -- or like other people's perception of a sick person. Once I started to doubt myself and the gravity of my illness, I began internalizing a whole lot of guilt.
Watching a Bruce Lee movie inspired me to live my life on my terms.
Growing up, Keenan Flynn rejected what he saw as negative messages surrounding cystic fibrosis. Keenan credits a healthy mental attitude, and a non-acceptance of the negative messages about his health, for his physical development.
We have about 70 chapters and offices across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a hub for the CF community. Get to know them!
All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.
My struggle to cope with my CF brought me to some dark places. The support of my care team helped me come to the light.
The Cystic Fibrosis Foundation presented four individuals with awards at the 2018 Volunteer Leadership Conference (VLC). The awards given were the Tomorrow's Leader Award, the Jena Award, the Alex Award, and the Dream Big Award.
CF MiniCon: Transplant is a virtual event for people with cystic fibrosis, their family members, and caregivers to learn about advanced lung disease and explore all stages of the transplant process.