How Compass Helps People With CF and Their Families

Living with cystic fibrosis comes with unique challenges faced by people with the disease, their families, and their care teams. Cystic Fibrosis Foundation Compass provides people in the CF community a resource to navigate complex issues, becoming a trusted partner in their care.

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Because of the COVID-19 outbreak, millions of Americans, including those living with cystic fibrosis and their families, are facing tough decisions around employment. The issue of paid leave and its eligibility is emerging as a top concern for people with CF and working members of their family.

Learn More About CF and Workplace Accommodations for COVID-19

For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as are nebulizers and vests. Cystic Fibrosis Foundation Compass is here to help you understand your insurance options so you can make the most well-informed decision about your coverage as possible.

• Your Insurance Plan
• Medicare
• Medicaid

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Many people with cystic fibrosis and their families have questions about their rights as an individual living with a disease. Cystic Fibrosis Foundation Compass case managers can connect you with legal experts who can help answer your legal questions, particularly in the areas of employment, education, health insurance, and government and disability benefits.

Learn More About Know Your Legal Rights

While living with cystic fibrosis can be expensive, financial resources may be available to help with the cost of medications, treatment, and living with CF.

• Finding Financial Assistance
• Financial Planning
• Postsecondary Transitions

View All Financial Matters Resources

People with cystic fibrosis courageously face some of life’s common challenges while managing a chronic disease. With help from Cystic Fibrosis Foundation Compass, people with CF do not have to face these challenges alone.

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Having a disaster and emergency preparedness plan during a natural disaster or emergency is especially critical when someone has a chronic illness. The Cystic Fibrosis Foundation made the following guide to help you or someone you know with cystic fibrosis prepare for a disaster or emergency.

Learn More About Disaster and Emergency Preparedness Plan