The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Dr. Jennifer Taylor-Cousar is passionate about bringing attention to health inequities in cystic fibrosis. By partnering with the CF Foundation, other organizations, and the CF community, she believes we can work together to create equitable health outcomes for everyone with CF.
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Check out a post by Brandon, an adult with CF, on clinical trials and why he found one to be rewarding even though the drug wasn't ultimately approved.
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Today, I no longer feel tied to a hospital bed and a grim diagnosis, and I have you to thank.
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More than 800 guests gathered to celebrate the therapeutic benefits that surfing brings to people with CF at the 8th annual Pipeline to a Cure gala.
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Finding out I had a terminal illness my junior year of high school was a life change I was not prepared for. And as my life and relationships change, I'm learning that the journey to acceptance never ends.
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I was thrilled to learn earlier this month that Emily Kramer-Golinkoff, a young woman living with cystic fibrosis, would be honored by the White House as a “Champion of Change” for her work to advance the field of personalized medicine.
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An inside look at the inspiration and purpose behind our new CF Community Blog.