The Highest Quality of Care
The Cystic Fibrosis Foundation funds and accredits care centers located at teaching and community hospitals across the country. These centers offer comprehensive, high-quality care. This elevated level of specialized care has led to longer, more fulfilling lives for people living
Care centers also participate in clinical research. And they help educate doctors, nurses, and health care teams about CF and the care required to help achieve and maintain the best possible health. To maintain CF Foundation accreditation, each center undergoes a review every year and periodic re-accreditation peer site
visits to make sure each care center provides a consistently high standard of care.
The CF Foundation's care center network combines clinical research with medical care best practices, and has been cited by the National Institutes of Health as a model of effective and efficient health care delivery for a chronic disease.
People with CF are living longer than ever before with the median predicted survival age continuing to increase.
Regular Care Center Visits
Visiting your care center at least four times a year is a very important part of managing your health with CF. During these visits, your CF care team will work with you to develop and revise your treatment plan and monitor your health.
Care centers use pulmonary function tests (PFTs), sputum or throat cultures, and blood tests, among others to monitor your health status. These tests can detect small decreases in lung function or a germ growing in the lungs before you feel them. This can help your CF care team take steps to prevent these issues from getting worse and causing bigger problems. You should contact your care center any time you're unsure about whether or not you should seek care.
Sweat tests, the "gold standard" for
diagnosing CF, are also done at Foundation-accredited care centers.