Age-Specific Care Guidelines

Cystic fibrosis is a chronic, lifelong disease, requiring treatment that changes with the needs of the person with CF as he or she ages in order to maintain health. The standard of care for CF from infant to adult care is laid out by the Foundation in its clinical practice guidelines.

What You Need To Know

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Infant Care Clinical Care Guidelines

These guidelines were developed by consensus based on expert opinion and a medical literature review to guide the monitoring and care of infants who have an abnormal cystic fibrosis newborn screening result, but do not meet the full criteria for a CF diagnosis.

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  1. Article

    Preschool-Aged Care Clinical Care Guidelines

    These preschool guidelines provide clinical care guidelines for people with cystic fibrosis between 2 and 5 years. It includes 53 recommendations intended to help make informed decisions in the care of preschool-aged children with CF.

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  2. Article

    Management of CRMS in First 2 Years and Beyond Clinical Care Guidelines

    These guidelines were developed by consensus based on expert opinion and a medical literature review to guide the monitoring and care of infants who have an abnormal cystic fibrosis newborn screening result, but do not meet the full criteria for a CF diagnosis.

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  3. Article

    Adult Care Clinical Care Guidelines

    These clinical care guidelines from the Cystic Fibrosis Foundation provide recommendations on how best to care for adults with CF.

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  1. Download

    Adult Care Checklist


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  2. Download

    Clinical Care Schedule for Newborns to 5-Year-Olds with CF

    This table combines the recommended care management schedules from infant and preschool-aged care guidelines.

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With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.

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