Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Learn more about what to expect after your colonoscopy.
During a colonoscopy, the gastroenterologist or colonoscopist removes polyps and sends them to a laboratory for analysis. There, they will determine whether the polyp is cancerous, precancerous, or noncancerous and contact you once your results are available.
After your colonoscopy, you will be monitored in a recovery area until most of the effects of the sedatives have worn off. You might experience some cramping or bloating due to the air introduced into the colon during the procedure, but this should pass.
Prior to your colonoscopy, you will need to arrange for someone you know to drive you home once the procedure is complete. Even though you will be awake when you leave, the medications administered during the procedure can impair your judgement and reflexes for the rest of the day.
“You will need a ride home, which means an actual person must meet you in the office/waiting area. Because the sedatives they give you during the exam affect everyone differently, the hospital will not let you take a cab, Uber, or Lyft home to ensure your safety.” -- Amy Braid, an adult with CF, from the CF Community Blog
You should be able to resume your normal diet after the exam, but your doctor may recommend that you stay away from certain foods and activities -- especially if a polyp is removed. Talk to your colonoscopist and cystic fibrosis care team to discuss the right post-exam plan for you.
Most polyps are noncancerous, and the type of polyp may be identified during a colonoscopy.
If the laboratory does find any cancerous polyps during the analysis, however, you will begin to work with an oncologist, colorectal surgeon, and your CF care team to discuss the role of further imaging to stage the cancer. The stage of a colorectal cancer depends on how deeply it has grown into the intestinal wall and if it has spread outside the colon or rectum.
Once the cancer has been staged, your team will work with you to discuss your treatment options, which may include surgery, chemotherapy, radiation, immunotherapy, and pain management, such as palliative care.
The American Society of Clinical Oncology offers a list of questions to ask your health care team to help you better understand your diagnosis, treatment plan, and overall care.
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