The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
![Zanny flexing her bicep which has a PICC line in it](/sites/default/files/styles/image_card/public/2024-04/Zanny-Steffgen-Featured-Image.png?h=8abcec71&itok=Fr7k5PvA)
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
![A professional headshot of Zanny Steffgen](/sites/default/files/styles/author_thumbnail/public/2024-04/Zanny-Steffgen-Headshot.png?itok=oD3iLvkp)
![Randi-Gleason-Great-Strides-Walk-Featured-rectangle](/sites/default/files/styles/image_card/public/2021-09/Randi-Gleason-Great-Strides-Walk-Featured-rectangle.jpg?itok=WpW4SjZT)
BLOG
As I reflect on the 30th anniversary of Great Strides and my 35-year journey living with cystic fibrosis, I celebrate all the CF community has accomplished together and am thankful to be able to share my story as a 2018 National Ambassador.
![Randi-Gleason-Headshot](/sites/default/files/styles/author_thumbnail/public/2021-09/Randi-Gleason-Headshot.jpg?itok=ebXnXB-j)
![Robin-Paterson-Meet-Ambassadors-Willem-Team-Featured-Rectangle](/sites/default/files/styles/image_card/public/2021-09/Robin-Paterson-Meet-Ambassadors-Willem-Team-Featured-Rectangle.jpg?itok=7mpNeDg_)
BLOG
Each year, Great Strides Ambassadors inspire walk participants across the country and are the face of the adult cystic fibrosis community. Meet the 2017 Ambassadors, Lea Faraone and Willem Wery, and learn why they stride for CF.
![Robin-Paterson-Headshot](/sites/default/files/styles/author_thumbnail/public/2021-09/Robin-Paterson-Headshot.jpg?itok=cdfQhfpE)
![John-Thomas-Wife-and-Kid-Featured-Square](/sites/default/files/styles/image_card/public/2021-09/John-Thomas-Wife-and-Kid-Featured-Square.jpg?itok=fimep2zf)
BLOG
My life milestones wouldn't have been possible without the drive and dedication of the generous people who donate to the Cystic Fibrosis Foundation.
![John-thomas-headshot](/sites/default/files/styles/author_thumbnail/public/2021-09/John-thomas-headshot.jpeg?itok=XgGzd3GF)
![Peter-Knockstead-GS-Bethesda-Rectangle](/sites/default/files/styles/image_card/public/2021-10/Peter-Knockstead-GS-Bethesda-Rectangle.jpg?itok=_pS1SWoi)
BLOG
Every year, hundreds of thousands of people raise millions of dollars for Great Strides -- the CF Foundation's largest national fundraising event. But did you know that the staff of the national office in Bethesda, Md., form their own department teams and also raise money alongside the CF community?
![Peter Knockstead Cropped](/sites/default/files/styles/author_thumbnail/public/2021-09/Peter%20Knockstead%20Cropped.jpg?itok=8NHwkx7g)
![Matthew-Lail-Great-Strides-Rectangle](/sites/default/files/styles/image_card/public/2021-10/Matthew-Lail-Great-Strides-Rectangle.jpg?itok=2iy1T3aZ)
BLOG
I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
![Matthew-Lail-Headshot](/sites/default/files/styles/author_thumbnail/public/2021-09/Matthew-Lail-Headshot-2-cropped%281%29.jpg?itok=bqxMCH6Q)
![Dora-Nagy-Paul-Freeman-MOH-2014-group](/sites/default/files/styles/image_card/public/2021-10/Dora-Nagy-Paul-Freeman-MOH-2014-group.jpg?itok=v_KZwoAb)
BLOG
Paul participates in Great Strides, advocates on the Hill and has even launched a CF fundraiser. Oh, and he's only 18.
![Dora-Nagy-headshot](/sites/default/files/styles/author_thumbnail/public/2021-09/Dora-Nagy-headshot.jpg?itok=n6XGRvGn)