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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Morgan Nudel holding flowers in a hospital room

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Learning to Take Charge of My Health as a Young Adult With CF

From scheduling appointments to dealing with insurance, taking charge of your own care is a part of becoming an adult with cystic fibrosis. However, when the time came for me to take over these responsibilities, I realized more could be done to make the transition smoother.

Morgen Nudel
| 6 min read
Ashely holding a nebulizer to her mouth in front of a wall of art.

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Listening to My Voice

My voice plays an important role in managing my cystic fibrosis. Breathing techniques that I have learned as a singer help me perform pulmonary function tests and my voice can signal a change in my health — if I listen to it.

Ashley-Ballou-Bonnema-Headshot
| 8 min read
Jennifer and her son wearing Medieval Times crowns

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It’s OK to Take Time to Rest

Life with cystic fibrosis can come with many recovery days. But it’s hard for me to avoid feeling guilty when I need time to rest and recharge. Working harder to be more productive and make up for the time I lost at work and with family while resting often leads me right back to my couch and needing to take another day to rest.

Jennifer Albright
| 7 min read
Amanda Biederman in the hospital with oxygen tubes and a port.

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What I’ve Learned About Self-Advocacy as a Person with CF and Nurse

Not only am I a member of the CF community, but I’m also a member of the clinical community — an oncology nurse — and I have had to endure hard lessons to learn to advocate for myself and get the medical care I need.

Amanda Biederman Headshot
| 12 min read
Kianna holding her dog in the woods.

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How I Got Through the Forest Fires in Oregon

My service dog, Jasper, and I relocated across the country and began to find our footing in our new home just before devastating forest fires started spreading around the area. Now, I feel more grateful than ever for the irreplaceable things in life, like Jasper. 

Kianna McAdams
| 7 min read
Maddy smiling in her college dorm next to her bed.

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How CF Taught Me to Be Flexible

When I was in college, I wanted to do it all and my health wasn’t as much of a priority anymore. I learned to accept that things will not always go according to plan and to integrate routine in my life to ensure my health comes first.

Maddy Hamp
| 5 min read