Our Top 10 Posts of 2015

Our top blog posts of 2015 focus on big decisions, difficult struggles and small battles against CF.

| 4 min read
Ashling-Knight
Ashling Knight
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When we launched the CF Community Blog in July, our goal was to provide a place where members of the cystic fibrosis community could come to share their thoughts and feelings openly, become more informed by each other, and most importantly, know there is a place where they can always find support.

During the past six months, you’ve done just that. Whether you joined the conversation in the form of a blog post, a comment or a personal message to one of our writers or each other, you have made this blog a success. Our most-read posts of 2015 reflect many aspects of life with CF: the good, the bad and the just plain messy. Did your favorite post make the list?  

 

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10. Checking Yes

By Hannah Buck | September 28, 2015
Annoying though it may have been for me, my mom was determined to raise a daughter who was healthy despite CF. However, we would both soon realize that not every symptom is visible. Read the full post. 
Read the full post.

 

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9. My Small War Against the Feeding Tube

By Kat Quinn | September 10, 2015
Why do we feel like failures if we can’t get our children to gain weight and have to concede the battle against the feeding tube?
Read the full post.

 

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8. My Decision to Stop Working

By Amy Braid | August 13, 2015
I stopped working when I was 29. It was a decision I had been wrestling with for a while, but I finally did it. Nearly six years later, I do not regret my decision, but every day it is a struggle.
Read the full post.

 

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7. “Ma, I got it.”

By Margarete Cassalina | July 17, 2015 
Independence doesn't come without a little growing pains, tears and a few silent treatments. But we never stopped working on our ever-changing relationship.
Read the full post.

 

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6. I Hope I Inspire You, Too: A Letter to my Best Friend

By Alyson Owens | October 29, 2015
Alexa was my best friend: the class clown, the leader of our wolf pack and the greatest sidekick I could ever have. Every day I spent with her was a blessing. I will cherish our memories until we meet again.
Read the full post.

 

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5. An Open Letter to Family and Friends This Flu Season

By Somer Love | December 3, 2015
Getting sick for a person with CF is so much more than a couple days off watching Netflix. It can be really scary. But you can help us stay healthy this cold and flu season.
Read the full post.

 

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4. 10 Things I Wish I Knew Before Coming to College

By Hannah Buck | August 12, 2015
Looking back at my freshman year, I realize that putting college before my CF wasn’t the first thing I had all wrong.
Read the full post.

 

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3. On Sadness and CF

By Katharine Scrivener |December 7, 2015
My emotions are constantly evolving through this journey with cystic fibrosis. And while I might feel like I am filled with sadness at times, my life is still very full.
Read the full post.

 

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2. Orkambi: A Life Sentence

By Amy Braid | September 22, 2015
I’ve lived my whole life like it has an early expiration date. Recently, a drug was FDA-approved that could change that. I’m grateful, but I’m also scared…
Read the full post.

 

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1. Baby Steps at 16 … and 30.

By Katharine Scrivener | July 27, 2015
Finding out I had a terminal illness my junior year of high school was a life change I was not prepared for. And as my life and relationships change, I'm learning that the journey to acceptance never ends.
Read the full post.

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About the CF Foundation
Ashling-Knight

Ashling previously worked at the Foundation as a digital content manager. She helped keep the Foundation's website and blog up to date with news and information that's important to the CF community. Ashling first got involved with the Foundation through Delta Phi Epsilon sorority at York College of Pennsylvania, where she earned her B.A. in public relations. Originally from New Jersey, she now lives in Pennsylvania with her husband, son, and two dogs.

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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.