Top 10 Blog Posts of 2018

With nearly 120 blog posts shared on the CF Community Blog this year, we're taking a moment to look back at some of your favorite posts. Check out the countdown to the most-read blog post below.

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Bethlehem Horn
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10. The Path Between Hope and Pessimism
By Ray Poole

When my wife’s health declined and we didn’t know if she’d be able to undergo a lung transplant, I decided to reject blind optimism and pessimism and chose a third path. Read the full post.

 

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9. My Slide Into Substance Misuse
By Marieliz Landa

I began taking prescribed medication to control my cystic fibrosis-related pain. Soon, the medication tried to control me. Read the full post.

 

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8. Remembering Claire Wineland
By Katherine Russell-Sponaugle

Although many of us were never able to meet Claire Wineland in person as fellow CF patients, her legacy and approach to the disease continue to have a major impact on the CF community. Read the full post.

 

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7. That Time We Went Viral and Where We Actually Are Today
By Jennifer Jones and Ron Ronnenberg

You may or may not have seen the video of the woman taking her first breath as her breathing tube is removed following her lung transplant. That was my fiancée, Jennifer. Read the full post.

 

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6. 5 Requests for My Friends and Family This Flu Season
By Katelyn Harlow

In the past, I was hesitant to voice my needs to my friends and family -- especially when it came to germs during flu and cold season. But as I've gotten older, I've realized that these five requests can help make this time of year a whole lot easier. Read the full post.

 

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5. Why CF Is More Than a Lung Disease
By Jennifer Sturgeon

Although cystic fibrosis is often considered to be primarily a lung disease, it is actually so much more. Read the full post.

 

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4. When Lungs Collapse
By Hogan Reed

I have had two collapsed lungs in three years. Here’s what I learned. Read the full post.

 

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3. Growing Up With a Sibling Who Has CF
By Katherine Black

Growing up with my sister, who has cystic fibrosis, has its challenges. Although it is sometimes difficult to watch her have to miss out on the things she loves, I’ve been able to learn so much and connect with many other amazing family members of those with CF. Read the full post.

 

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2. Life on Symdeko™ Three Months Later
By Hannah Buck

I had to stop taking Orkambi® because my body couldn’t handle it. I’m having a different -- better -- experience with Symdeko™. Read the full post.

 

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1. 5 Things I Wish People Knew About My Life With CF
By Morgan Barrett

Cystic fibrosis is a complex disease that affects each person living with it differently. I think it's so important for us to learn to understand each other, so I've come up with things I wish others knew about me and my specific experiences with CF. Read the full post.

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About the CF Foundation
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Bethlehem is a senior web content coordinator at the Cystic Fibrosis Foundation. In her role, Bethlehem manages the editorial calendar, contributor relationships, and production process for the CF Community Blog. She also works to implement the editorial calendar for other areas of the site, and maintains a consistent look and feel throughout cff.org. She has a bachelor's degree in communications with a concentration in public relations from the University of Maryland, College Park. Outside of work, Bethlehem enjoys exercising, cooking, and spending time with her family. Her guilty pleasures? Watching YouTube vlogs and eating tons of chocolate.

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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.