Five Feet Apart: A Discussion Guide

Whether you have CF or are a parent of a child with cystic fibrosis, we want you to feel ready to talk about what you see in the movie, Five Feet Apart.

4 min read

The film Five Feet Apart has sparked dialogue all throughout the cystic fibrosis community. From online to the dinner table, people with CF and their families are having discussions that perhaps they hadn't yet planned. The topics addressed in Five Feet Apart are important, but they are not always easy to talk about. Whether you have CF or are a parent of a child with CF, we want you to feel ready to talk about what you see in the movie.

Some Questions to Start the Conversation*

Film Accuracy

  • How do you feel about seeing cystic fibrosis featured in a Hollywood movie?
  • How are the characters you saw in the movie different from your experience with CF?
  • Let's talk about how a hospital stay looks or feels different than what the movie portrays.
  • What part of the movie felt the most realistic to you? What felt unrealistic? What would you have done differently if you were making a film about CF?
  • What questions do you have about the movie? 

Questions the Film May Trigger

  • Have kids at school asked you any questions about your/my CF?
  • What kind of questions have you been getting and how have you been responding? Can I help you to brainstorm responses?
  • Did the movie raise any questions for you about CF?
  • The movie talks about death and dying. How did that make you feel?
  • The movie focuses on being able to physically be close to people you care about. How do you feel about the “six feet rule” or the things you/we have to do to prevent infections?
  • Were you surprised at any information about lung transplants in the movie? Is there anything you want to write down together to ask your/my care team about transplant?

*These questions were created for younger audiences and assuming a parent/child relationship. You may wish to adjust the language depending on your loved one's age or relationship to you.

Topic  Resources

Infection control or the "six feet apart" rule

Life expectancy, death, and dying

Here are some perspectives from the community:
Here is the latest research:

Grief and the loss of a loved one

Here are some perspectives from the community:
Hospitalizations Here are some perspectives from the community:

Transplant

Here is the latest information:
Here are some perspectives from the community:

Clinical trials

Here is the latest information:
Here are some perspectives from the community:
Making connections with other community members Here is a program to join:
Virtual events to attend:
Ways to get involved:
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Five Feet Apart: A Discussion Guide Download (PDF)
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