CF Circles

CF Circles are small group discussions that allow you to feel heard and share your experiences with others.

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About CF Circles

Feel heard and share your experiences with others through CF Circles. These topic-based, hour-long small group discussions allow primarily adults with cystic fibrosis to gather virtually with a handful of people to talk about their unique experiences, such as not benefiting from CFTR modulators, receiving a delayed CF diagnosis, living as a Black person with CF, and more.   

I felt alone in my diagnosis and kind of like I didn’t really fit in anywhere. Last night I felt I gained a new family." — CF Circles participant

Discussions provide an opportunity to connect with and find validation from those who understand what you’re going through. Attendees are divided into small breakout groups of approximately 5-10 individuals based on their specific experiences to allow for more intimate, personalized conversations. Each group is led by a member of the CF community who has been trained to facilitate discussion and create a welcoming environment. Sessions accommodate a maximum of 100 registrations. If interest exceeds capacity, an additional session will be planned shortly after. Interested in playing a more active role in CF Circles? Sign up to learn more about leading future sessions.

Hearing other people’s stories about what they have been through made me feel less alone." — CF Circles participant

By sharing your experiences and hearing from others, you can find camaraderie in the ups and downs of your CF journey. This mutual support can not only foster a sense of belonging but can also provide practical guidance to help you navigate your path forward with confidence. 

Interested in playing a more active role in CF Circles? Sign up to learn more about leading future sessions.

Register for CF Circles

Pre- and Post- Transplant Experiences

Join this peer-led CF Circle focused on transplant experiences, with conversations about life both before and after organ transplant. This virtual small-group discussion is designed for adults with CF — or parents and caregivers of people with CF — who are considering or currently undergoing transplant evaluation, waiting for a transplant, or are living life post-transplant. This session will begin at 7 p.m. ET.

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Navigating Modulator-Related Health Changes

This small group discussion is open to adults with CF who are taking or have taken a CFTR modulator therapy (such as Kalydeco, Orkambi, Symdeko, Trikafta, or Alyftrek) and offers a supportive virtual space to talk about physical and mental health changes. Conversations may explore quality of life, mood disorders, sleep interruptions, memory issues, GI symptoms, weight gain, liver function, and more. This session will begin at 7 p.m. ET.

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Upcoming Sessions

Life With GI Issues
Life Without CFTR Modulators
Life as a Hispanic Person with CF
Costs of Life with CF
Newly Diagnosed 
Health Challenges While Living Longer 

Sign up to be notified when registration opens for upcoming CF Circles.
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