CF Circles

CF Circles are small group discussions that allow you to feel heard and share your experiences with others.

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About CF Circles

Feel heard and share your experiences with others through CF Circles. These topic-based, hour-long small group discussions allow primarily adults with cystic fibrosis to gather virtually with a handful of people to talk about their unique experiences, such as not benefiting from CFTR modulators, receiving a delayed CF diagnosis, living as a Black person with CF, and more.   

I felt alone in my diagnosis and kind of like I didn’t really fit in anywhere. Last night I felt I gained a new family. — CF Circles participant
 

Discussions provide an opportunity to connect with and find validation from those who understand what you’re going through. Attendees are divided into small breakout groups of approximately 5-10 individuals based on their specific experiences to allow for more intimate, personalized conversations. Each group is led by a member of the CF community who has been trained to facilitate discussion and create a welcoming environment. Sessions accommodate a maximum of 100 registrations. If interest exceeds capacity, an additional session will be planned shortly after. You can sign up to be the first to know about future CF Circle sessions. 

Hearing other people’s stories about what they have been through made me feel less alone. — CF Circles participant
 

By sharing your experiences and hearing from others, you can find camaraderie in the ups and downs of your CF journey. This mutual support can not only foster a sense of belonging but can also provide practical guidance to help you navigate your path forward with confidence.  

Interested in playing a more active role in CF Circles? Sign up to learn more about leading future sessions.

Register For CF Circles

Managing Finances Navigating the Financial Impact of CF

In this session, participants can discuss the many ways cystic fibrosis might affect their everyday lives — such as paying for healthcare, dealing with changes to income and employment, or making financial tradeoffs.  Join the conversation to discuss how you manage the expenses of life with CF or how CF impacts your career path. Open to adults with CF ages 18+ and parents or caregivers of people with CF.

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Diagnosis Late or Delayed CF Diagnosis

This small group discussion is a place for adults who were diagnosed with cystic fibrosis as a teen or adult to connect with others who share similar experiences. Join the conversation to share insights, find support, and explore what life with a late or delayed CF diagnosis means for you. Open to adults with CF ages 18+.

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Aging with CF Living Longer: Redefining Life With CF

This small group discussion provides a supportive space for adults with CF to connect with others who share similar experiences. Discuss topics like changes in health, shifting priorities, and redefining what aging looks like with CF. Explore what it means to live beyond the expectations once set by this disease.  Open to adults with CF ages 18+. 

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Medications Pain Management

This small group discussion is a place where adults with CF can connect with others who share similar experiences around joint, gastrointestinal (GI), musculoskeletal, post-transplant, or other CF-related pain challenges. Join the conversation to share insights, foster connections, and get support. Open to adults with CF ages 18+.

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Upcoming Sessions
  • Delayed CF Diagnosis
  • Life as a Black Person with CF 
  • Life Post-Transplant
  • Cost of Care With CF
  • Pain Management
Sign up to be notified when registration opens for upcoming CF Circles.
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Have questions? We’re here to help. Call us at 1-800-FIGHT CF

(1-800-344-4823)
Mon - Thu, 9 am - 5 pm ET
Fri, 9 am - 3 pm ET

 

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