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News and Press Releases
About the CF Foundation | Public Policy | Advocacy Foundation Joins Chronic Disease Organizations to Educate Policymakers on Needs of People with CF

The Cystic Fibrosis Foundation joined 72 chronic and rare disease organizations to send a letter to President-elect Trump and Congressional leadership.

| 3 min read
About the CF Foundation | Get Involved Foundation Announces 2017 Volunteer Leadership Conference Co-Chairs

Ginger Birnbaum and Mike Beatty lead efforts in Dallas for banner conference -- "teamMATEs for a Cure.”

| 2 min read
About the CF Foundation | North American CF Conference | Research Cystic Fibrosis Foundation Congratulates Recipients of 2016 Research and Care Awards

At the 2016 North American Cystic Fibrosis Conference (NACFC) held on Oct. 27-29 in Orlando, Fla., the Cystic Fibrosis Foundation announced the recipients of seven awards given to members of the research and medical community whose achievements have helped advance cystic fibrosis research and care.

| 4 min read
About the CF Foundation | North American CF Conference Videos of NACFC 2016 Plenary Sessions Are Available Online

More than 4,600 cystic fibrosis researchers and health care professionals gathered Oct. 27 - 29 in Orlando for the 30th annual North American Cystic Fibrosis Conference. Recordings of the three plenary sessions are now available online.

| 4 min read
About the CF Foundation | Fundraising Actor-comedian Garry Shandling Makes a Difference for CF Community

Garry Shandling leaves a legacy gift to the Foundation in honor of his late brother, who had cystic fibrosis.

| 3 min read
About the CF Foundation | CFTR Modulators FDA Expands Use of Orkambi® to Children Ages 6 to 11 With CF

The U.S. Food and Drug Administration (FDA) approved the use of lumacaftor/ivacaftor (Orkambi®) today for children with cystic fibrosis ages 6 to 11, who have two copies of the F508del mutation.

| 2 min read
About the CF Foundation | Public Policy | Lung Transplantation Community Liaison Piper Beatty Participates in FDA Meeting on Organ Transplantation

Piper Beatty, a two-time double-lung transplant recipient, testifies at an FDA meeting on organ transplantation.

| 2 min read
About the CF Foundation | Public Policy | Insurance Archived Webinar: Disability and Cystic Fibrosis

On Thursday, September 22, experts from the Social Security Administration joined the CF community for a conversation on disability eligibility and the application process.

| 1 min read
About the CF Foundation | Cystic Fibrosis Foundation Therapeutics (CFFT) CF Foundation Opens One-of-a-Kind Research Lab

Expanded Research Lab to Apply Latest Scientific Advances -- Including Stem Cell Research and Gene Editing -- to Accelerate New Treatments for CF

| 3 min read
About the CF Foundation | Public Policy | Insurance Social Security Administration Updates Eligibility Requirements for Disability

The CF Foundation applauds the Social Security Administration's updated eligibility requirements for disability benefits for people with respiratory diseases, including people with CF.

| 3 min read