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News and Press Releases
Health Care Reform | Advocacy | Insurance 27 Patient Groups Express Disappointment in Final Rule on Short-Term, Limited-Duration Insurance Plans

Responding to the U.S. Department of Health and Human Services final rule on short-term, limited-duration insurance plans, the Cystic Fibrosis Foundation joined 26 other nonpartisan patient and consumer groups to voice concern that these plans will split the market and jeopardize access to affordable, adequate health care for people living with pre-existing conditions.

| 3 min read
Health Care Reform | Our Advocacy Work | Insurance CF Foundation Responds to Final Short-Term, Limited-Duration Health Insurance Rule

Yesterday, the U.S. Department of Health and Human Services finalized a rule expanding short-term, limited-duration insurance plans -- threatening access to adequate, affordable coverage for people with cystic fibrosis who rely on the individual marketplace.

| 2 min read
Advocacy | Insurance 17 Patient Advocacy Organizations: Congress Must Act to Stabilize Insurance Markets After Repealing Individual Mandate

A group of nonpartisan patient and consumer organizations issued a statement after passage of the Tax Cuts and Jobs Act.

| 2 min read
Health Care Reform | Advocacy | Insurance Cystic Fibrosis Foundation Joins 86 Organizations to Call on Congress to Protect Medicaid

On March 20, the Cystic Fibrosis Foundation and 86 other organizations called on Congress to protect Medicaid, a critical source of coverage for people in the cystic fibrosis community. 

| 2 min read
About the CF Foundation | Public Policy | Insurance Archived Webinar: Disability and Cystic Fibrosis

On Thursday, September 22, experts from the Social Security Administration joined the CF community for a conversation on disability eligibility and the application process.

| 1 min read
About the CF Foundation | Public Policy | Insurance Social Security Administration Updates Eligibility Requirements for Disability

The CF Foundation applauds the Social Security Administration's updated eligibility requirements for disability benefits for people with respiratory diseases, including people with CF.

| 3 min read
About the CF Foundation | Public Policy | Insurance Insurance Coverage Remains a Top Concern for People with Cystic Fibrosis

Lack of insurance coverage for cystic fibrosis-related medications remains a top concern for people with CF and their families, a recent study found.

| 2 min read
About the CF Foundation | Public Policy | Insurance Members of Congress Express Concern about Proposed Changes to Social Security Disability Benefits

In an effort led by Congressional Cystic Fibrosis Caucus co-chairs Representatives Edward Markey (D-MA) and Tom Marino (R-PA) and Senator Michael Bennet (D-CO), 37 key members of Congress sent letters to the Social Security Administration (SSA) expressing their concern about a proposed rule that could make it more difficult for people with CF to receive disability benefits.

| 2 min read
About the CF Foundation | Public Policy | Insurance CF Foundation Expresses Concern about Proposed Changes in Disability Benefits

On behalf of the CF community, the Cystic Fibrosis Foundation has expressed its concern to the Social Security Administration (SSA) about a proposed rule that could make it more difficult for people with CF to receive disability benefits.

| 2 min read