More women with cystic fibrosis are reaching reproductive age, becoming pregnant, and delivering babies. Nutrition before and during pregnancy is essential for all women.
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By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our archived state and federal statements, letters, and regulatory comments from 2018–June 2023.
The Cystic Fibrosis Foundation believes in empowering our community to advocate for the needs of people with cystic fibrosis. During an election cycle, it's important to ask questions of candidates to understand how their positions would impact the CF community.
Women with cystic fibrosis can safely breastfeed without compromising their baby's health. However, there are still factors related to your own health that you will need to consider before you decide whether breastfeeding is right for you.
Pregnant women with cystic fibrosis will need to be more closely monitored than the average pregnant woman. Learn how you can partner with your CF care team and obstetric team to effectively manage your pregnancy.
Becoming pregnant after a lung transplant is possible, but is associated with increased complications. Learning more about post-transplant pregnancy can help you understand the potential risks and health implications.
Advocacy efforts to raise awareness about cystic fibrosis and ignite change don’t just happen on Capitol Hill during events like March on the Hill and Teen Advocacy Day. In fact, advocacy is a continuous effort that begins, and is highly effective, at home.
The Congressional Cystic Fibrosis Caucus unites bipartisan members from both chambers to raise awareness for CF; support CF research, drug discovery, and development; encourage collaboration between the public sector and private organizations; and support access to quality, affordable care for people living with CF.
Being a parent with cystic fibrosis can be difficult, but a strong support system can help. By learning more about what to expect as a parent with CF, you can find new ways to balance your own health with the time it takes to care for your child.
The Cystic Fibrosis Foundation, alongside the CF community, urges Congress to pass the PASTEUR Act and the HELP Copays Act.