Teams of dedicated health care professionals in a nationwide network of more than 130 Cystic Fibrosis Foundation-accredited care centers partner with people with CF and their families to provide expert care and specialized disease management.
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CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF Foundation Patient Registry. The information is available in aggregate to the CF community each year through the Data Report, the Highlights Report, and the Care Center Finder.
Gyms are wonderful places to exercise, but they can also be great places for germs. Germs can spread as far as six feet (two meters) through droplets released in the air by coughs or sneezes, and can remain in the air on tiny droplets -- ready to be breathed in.
If your child has cystic fibrosis, chances are you have some concerns about school fitness activities like physical education classes or school sports teams. Even though some people with CF have trouble breathing and tire easily, exercise can be especially important.
All too often, we begin an exercise program but quickly quit. Change doesn't happen all at once, nor does it happen at the same rate for different people. Starting at the right pace is important, and knowing your fitness level, or state of readiness, is key to finding the exercise plan that's right for you.
Individuals with cystic fibrosis and other chronic diseases often have a “hidden” loss of muscle mass, despite normal body weight and BMI. Increasing your protein intake and exercising regularly are easy ways to preserve muscle mass.
Quarterly visits to a CF Foundation-accredited care center are the foundation of your treatment plan. By partnering with your care team, you can also adjust your treatment plan as new therapies become available, or your needs change over time.
Whether you're considering a lung transplant or maintaining your health if you've had a transplant, this list can help you learn about transplant centers, including the one your cystic fibrosis care team may have referred you to.
People with cystic fibrosis continue to live longer and healthier lives, and the Patient Registry data support this general trend. To understand what this means for our community, however, it is important to understand how these numbers are calculated and what they represent.
The benefits of regular exercise and good physical fitness for everyone have become well known in the past 50 years. So, how do these benefits apply to you?