Living with CF means I quickly became familiar with the patient side of the health care field. My experiences in the hospital have motivated me to become the kind of nurse that listens to and advocates for their patients.
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Members of the council lend their voices to convey the hopes, needs, and aspirations of the CF adult community.
When I started coughing up blood, letting my care team know helped me handle it the next time.
At this age, your child with cystic fibrosis is ready to transition from breast milk or formula to whole milk or a high-calorie supplement. Encourage independent eating. Create a consistent schedule and mealtime expectations.
Individuals with cystic fibrosis require more energy to breathe normally, fight lung infections and compensate for poor digestion. For these reasons, they need more calories than people without CF.
Your body needs vitamins to help it grow, function, and fight off infection. Try to incorporate foods rich in these vitamins and take a vitamin supplement, if necessary.
Like vitamins, minerals also help with normal growth, function and maintenance of good health. Individuals with cystic fibrosis can be deficient in these minerals.