The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.
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Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.
Christina Roman
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1 min read
Dr. Jennifer Taylor-Cousar shares new developments in drugs that fight infections in the lungs of people with cystic fibrosis.
Christina Roman
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1 min read
Ever wonder about an aspect of cystic fibrosis that you would love someone to research? Find out how you can submit a question in our first community-driven research project.
Emma D’Agostino
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2 min read
In the third plenary, Dr. Wayne Morgan talked about the connection between cystic fibrosis care and the Patient Registry, and introduced a new way for people with CF, along with their families, to help shape the research conducted using the Registry.
Aliza Fink, D.Sc.
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4 min read
News
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March 2, 2009
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1 min read
Press Release
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Jan. 23, 2008
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6 min read
Press Release
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July 8, 2008
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5 min read
News
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Aug. 1, 2008
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1 min read
News
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Dec. 22, 2009
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2 min read