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The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.

The Success with Therapies Research Consortium helps the clinical study of interventions so people with cystic fibrosis can improve the consistency of their day-to-day management of their CF to optimize health outcomes and quality of life.

Based in Lexington, Mass., the Cystic Fibrosis Foundation Therapeutics Lab conducts groundbreaking CF research to help rapidly advance new therapies.

The journey to end cystic fibrosis isn't a straight line. It is an evolving map with many paths and unique challenges. It requires an ambitious research agenda to accelerate treatments and drug development for the underlying cause of the disease and ultimately deliver a cure.

The Cystic Fibrosis Foundation is the world's leader in the fight against CF, and our scientific portfolio reflects our drive to provide effective treatments and — one day — a cure to every individual with this disease.

Learn how your child's safety is protected, what to expect during a trial, and how to involve your child in the decision-making process.

Once your clinical trial is over, you can follow its progress online or follow up with your care team to find out about results. Learn how to use the Clinical Trial Finder and Drug Development Pipeline to track your trial and stay informed about current research.

There are two main types of clinical studies in CF research. Both are important to move research forward and provide the best outcomes for people with CF.