Today Vertex Pharmaceuticals Inc. announced the two next-generation CFTR modulator candidates that will progress into Phase 3 clinical trials.
Site Search
Mary Duggan Lee Watson, a longtime coach, doesn't mind taking on adversity. When her granddaughter was diagnosed with CF, she decided to fight the disease doing what she loved: sports.
Join us via live stream for the 2016 CF Foundation Volunteer Leadership Conference and make your voice heard.
I thought I would never get married -- I didn't want to burden anyone else with my CF. But, after meeting Ramon, we knew we wanted to get married and the only gift we wanted was time.
For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.
I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
When my 8-year-old daughter with CF found out that the disease is potentially fatal, I was grateful for her optimistic views on life and death. But deep down, I was saddened with the thought of a cure being so far away that I wouldn't be around to see it. Today, my fears have dwindled.
Paul participates in Great Strides, advocates on the Hill and has even launched a CF fundraiser. Oh, and he's only 18.