The Cystic Fibrosis Foundation today announced an unprecedented acceleration and expansion of its research, care and patient programs for the CF community. This action is possible as a result of the sale of the Foundation's royalty rights to CF treatments developed by Vertex Pharmaceuticals Inc. The Foundation received $3.3 billion from the sale to Royalty Pharma.
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HealthWell to offer co-pay assistance for CF-specific, FDA-approved drugs including prescribed vitamins and supplements.
The U.S. Food and Drug Administration (FDA) announced that it has approved Ultresa™ delayed-release capsules, a pancreatic enzyme replacement therapy. Ultresa (pancrelipase) is manufactured by Aptalis Pharma.
Navigating CF is a series of short videos that help people with CF, their families, and care teams navigate complex issues. No matter where you are on your journey, Navigating CF can help.
Receiving a denial for a service or treatment from your insurance company can leave you with many questions. Fortunately, most insurers have a process, called an appeal, by which you can ask them to reconsider their decision to deny coverage.
From budgeting for the everyday, to triaging the unexpected and dreaming of the future, there is a lot to consider when building a financial plan. While living with cystic fibrosis may be costly, financial planning can help ease some of the stress you may feel so you can focus on other areas of your life.
Having a disaster and emergency preparedness plan during a natural disaster or emergency is especially critical when someone has a chronic illness. The Cystic Fibrosis Foundation made the following guide to help you or someone you know with cystic fibrosis prepare for a disaster or emergency.