When it comes to my cystic fibrosis care team, I've learned that it's often the little moments that matter most.
Site Search
As an adult with cystic fibrosis, I know just how powerful and creative the CF community can be. That's why I'm excited to announce the four 2017 Impact Grant awardees who are making a positive impact on the CF community.
The CF Adult and Family Advisors (AFA) just got a fresh new look and name: Community Voice. By joining this group, people with cystic fibrosis and their family members have an active say in the Cystic Fibrosis Foundation's initiatives, driving improvements that benefit everyone impacted by CF.
Working as part of a cystic fibrosis care team gives me the opportunity to provide the type of personal care I’m passionate about — I just hope my patients understand how much we are invested in their well-being.
When I started coughing up blood, letting my care team know helped me handle it the next time.
CF care centers have worked hard to improve health outcomes. A new initiative seeks to improve the quality of our experiences at care centers.
As Evan's mom, I have to constantly decide where to invest my time, especially when it comes to providing feedback. So, when offered the chance to turn my survey fatigue into something that would actually make a difference and be less of a hassle to do, I jumped at it.