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Alongside the cystic fibrosis community, we advocate for policies and programs that promote access to highly specialized CF care and that help advance research and drug development.
View the Cystic Fibrosis Foundation's Board of Trustees and Advisors.
We want to hear from you. Learn how you can contact the Cystic Fibrosis Foundation.
Every May, the cystic fibrosis community comes together for CF Awareness Month. The theme of this year’s CF Awareness Month is, “Resilient.” The Cystic Fibrosis Foundation has shareable resources to help you tell your story on social media this month and any time of year — no matter what your connection to CF is.
Caring for a child with CF can be a lot to juggle — from the many medications and daily treatments to the endless doctor's appointments. But I’ve found a system that helps me stay organized and stress-free so that I can focus on what really matters.
Learn more about KC White, chair of the CF Foundation’s Board of Trustees.
At the Cystic Fibrosis Foundation, we commit to equity, racial justice, diversity, and inclusion as core principles guiding our efforts to provide all people with CF the opportunity to live long, fulfilling lives.
Ad hoc patient advocacy coalition provides comments to Pennsylvania’s Insurance Commission to inform decision making regarding the state’s essential health benefits benchmark plan.