People with cystic fibrosis continue to live longer and healthier lives, and the Patient Registry data support this general trend. To understand what this means for our community, however, it is important to understand how these numbers are calculated and what they represent.
CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF Foundation Patient Registry. The information is available in aggregate to the CF community each year through the Data Report, the Highlights Report, and the Care Center Finder.
Tomorrow's Leaders is the Cystic Fibrosis Foundation's young professionals group, offering members the opportunity to connect with others, learn and grow personally and professionally, all while making a difference in the lives of those living with cystic fibrosis.
Quarterly visits to a CF Foundation-accredited care center are the foundation of your treatment plan. By partnering with your care team, you can also adjust your treatment plan as new therapies become available, or your needs change over time.
For many, attending college is one of life's important milestones, and a big step towards building the future you want. Having cystic fibrosis doesn't mean you can't pursue your academic goals and dreams, but a new environment can present new obstacles and challenges.
A virtual program for current and recent college students who want to continue building new leadership, advocacy, and fundraising skills to make a difference on their campuses and beyond.