I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
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Ever wonder, “Does my donation make a difference?” For people with cystic fibrosis like Jake Bachman, your generosity will give him a chance for the future. This Giving Tuesday, give to an organization that's determined to find a cure for all people with cystic fibrosis.
Ever wondered what it takes for a potential cystic fibrosis drug to become approved by the U.S. Food and Drug Administration? Here's an explanation of the four phases of clinical research.
An award-winning chef shares his recipe for people with cystic fibrosis, just in time for the holidays.
A reality show inspired this family to create an ingenious fundraising and awareness event for cystic fibrosis.
More than 800 guests gathered to celebrate the therapeutic benefits that surfing brings to people with CF at the 8th annual Pipeline to a Cure gala.
Earlier this month, we learned that the new CF drug Orkambi was approved by the FDA. This was such an exciting, memorable and emotional day for everyone in the CF community. We heard from many who were thrilled about the potential for this drug to help people with CF and also heard from those who would not benefit from this breakthrough. Following are some reactions from those this impacts the most: people with CF and their loved ones.
The radio stations are filled with holiday music, but as 2015 comes to a close, I find myself listening to an entirely different playlist. In my mind, there are not only songs that make me reflect on the path that my family has so carefully traveled so far, but also the hope and the promise of all the good things yet to come.
The U.S. Food and Drug Administration (FDA) approved the use of ivacaftor (Kalydeco®) today for people ages 2 and older with cystic fibrosis who have at least one of the following five splice mutations: 3849+10kbC->T, 2789+5G->A, 3272-26A->G, 711+3A->G, E831X.