After my son, Zach, was diagnosed with this cystic fibrosis, my wife and I began to understand the many challenges associated with it. We quickly realized we wanted to support the Cystic Fibrosis Foundation so we could help our son in every way possible. Here are some fundraising ideas that were simple, yet effective, for us in securing donations.
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I kept at riding because every time my lungs would get tight, I thought of people with CF who would give anything to be out of breath just because they were riding up a hill.
Living with cystic fibrosis is a constant reminder of the things that have been taken from me. I feel like I've made a bargain with the devil, so to speak.
I'm so excited for the 2017 Volunteer Leadership Conference in Dallas, Texas! We can't wait to share the conference with everyone both in Dallas and via the live stream.
It wasn't until my son was born with cystic fibrosis that I became motivated to raise money for a cause. In the past three years, I have learned quickly how to manage my time and maximize donations.
Finding a Balance Between CF and High School
In a culture flooded with advertisements about the perfect body, secret weight-loss tricks and fad diets, our cultural ideals of weight are often skewed to an image that is far from healthy.
When I was 13, my family went from having two seemingly normal kids to two CF patients in a manner of a few short months -- and boy, did it change everything. Because of my late diagnosis, I faced a unique set of challenges that helped make me the strong person I am today.
Time after time, cystic fibrosis has shown me that what I thought was important could change with changing circumstances.
I thought I would never get married -- I didn't want to burden anyone else with my CF. But, after meeting Ramon, we knew we wanted to get married and the only gift we wanted was time.