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News and Press Releases
Public Policy Final Budget Reconciliation Bill May Pose Challenges for People With CF

The president's signing of this bill into law now has the potential to disrupt adequate, affordable care for people with cystic fibrosis and their loved ones.

July 3, 2025 | 4 min read
Public Policy CF Foundation Condemns Senate-Passed Reconciliation Bill

Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the Senate's disregard for the serious concerns raised by health advocates nationwide.

July 1, 2025 | 3 min read
Public Policy More than 150 Advocates Urge Congress to Protect Coverage During the Cystic Fibrosis Foundation’s 17th annual Teen Advocacy Day

More than 75 teens relayed the importance of adequate, affordable health care coverage for people with CF.

June 30, 2025 | 3 min read
Public Policy CF Foundation Implores the Senate to Vote Against Devastating Cuts to Necessary Health Care

Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to maintain their health.  

June 17, 2025 | 3 min read
About the CF Foundation Survey Results Detail CF Community’s Ongoing Challenges and Commitment to a Cure for All With CF

Nearly 2,000 individuals in the cystic fibrosis community provided insights on the burden of the disease, research priorities, and more to help inform the CF Foundation’s next strategic plan.

June 11, 2025 | 4 min read
Milestones III Surpasses $200M and Sets Bold New Goal

Ambitious fundraising campaign continues the legacy of philanthropic leader and CF champion Joe O'Donnell

May 14, 2025 | 3 min read
Public Policy Cystic Fibrosis Foundation Urges Congress to Reject Harmful and Reckless Cuts to Medicaid

Medicaid is a lifeline for nearly 40% of people living with cystic fibrosis. 

May 13, 2025 | 2 min read
Diagnosis International Journal Publishes Recommendations for CF Newborn Screening

The guideline publication represents the next chapter of the Foundation’s Newborn Screening Initiative.

April 3, 2025 | 6 min read
Public Policy CF Foundation Responds to Mass Reductions in Force Across the FDA and NIH

Sudden cuts threaten transformative treatments and a cure for CF

April 2, 2025 | 4 min read
Public Policy Patient Groups Urge Caution Around Disruptions to Critical Safety-Net Programs

Drastic changes to essential services could have a devastating impact on patient health and well-being. 

April 1, 2025 | 3 min read