Who We Are
We are fueled by a dedicated group of scientists, caregivers, donors, volunteers, and people with CF and their families who are united by a common goal: to find a cure for this devastating disease and help those with CF live longer, healthier lives.
We are driven by a dream that one day, not one person will lose a life, child, sibling, parent, or friend to cystic fibrosis, and we are determined to succeed.
Watch Mandie Sherman, an adult with CF, talk about what the progress we have made in cystic fibrosis has meant or her life today and her future plans.
What We Do
Our approach to curing cystic fibrosis and caring for those affected by the disease is three-fold.
We fund more innovative, groundbreaking CF research than any other organization in the world.
We have invested hundreds of millions of dollars into CF research and drug development. The results of these bold investments have been astonishing. Because of our efforts, people with cystic fibrosis are living longer, healthier lives and pursuing dreams they never before thought possible.
- Learn more about the research we support.
- Take note of major CF research milestones.
- Browse the CF drug development pipeline.
- Read about our venture philanthropy business model.
We provide expert care for people with CF through our nationwide network of accredited care centers.
Cystic fibrosis is a complex disease that affects every person differently. That’s why we’re dedicated to helping people with CF get individualized care that’s tailored to their unique needs.
We help people with cystic fibrosis and their families get the tools and support they need to lead healthy lives today.
The incredible strides we’re making in research and drug development mean nothing if people with CF don’t have access to the care and therapies they need.
We’re working diligently to ensure all people with CF have access to the best medical, educational, and financial resources available.
- Learn more about navigating health insurance and affording care.
- Read about our advocacy efforts on behalf of people with CF.
Learn more about how you can join us in our life-saving mission.
Through dramatic improvements in treatment and care, we are adding tomorrows for people with the disease.
A few decades ago, most people with CF didn’t live long enough to attend elementary school. Today, people with the disease are graduating from high school and college, pursuing careers, getting married, and starting families of their own.
- The life expectancy of someone born with CF has doubled in the last 30 years. Today, many people with CF are living into their 30s, 40s, and beyond.
- Nearly every CF drug currently available was made possible through Foundation support.
- Once considered exclusively a childhood disease, approximately half of all people living with CF today are over the age of 18.