CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Cambrey smiling with her husband and son.


Struggling to Process My Son’s Rare Mutations

I struggled emotionally after learning that after negative carrier and newborn screens, my son had cystic fibrosis. I’m now advocating for people with rare mutations.

Cambrey White
| 6 min read
Kelsey Scott making silly faces with her son.


9 Ways to Support a Family With a Child With CF

There are many ways you can support a family with a child or children with cystic fibrosis. Educating yourself about the disease and its treatments and offering to help without being asked are some of the best ways you can show you care.

Kelsey Scott Headshot
| 7 min read
Dana's sons Cooper, Easton, and Krew.


The Long Wait to Finally Get to a CF Diagnosis

It took an agonizing five months to learn whether my second son had cystic fibrosis. After two inconclusive sweat tests, a DNA test finally gave us the answer.

Dana Kibbel headshot
| 8 min read
Kayler Young and Family


How Three CF Diagnoses Changed My World

I went from knowing nothing about cystic fibrosis to having the three most important people in my life diagnosed with the disease. I was shocked to learn that not only did my two children have CF, but also my husband had it.

Kayler Young Headshot
| 7 min read
Jenessa Kildew Holding Newborn


NICU Advice From a Mom of a Newborn With CF

Having a baby spend a long time in the NICU is difficult. Here are some things I learned about how to deal with it.

Jenessa Kildew Headshot
| 6 min read


Looking Back at the First Year After My Son’s CF Diagnosis

It's been a whirlwind year since my son was born and diagnosed with cystic fibrosis. Despite the surgeries, hospital stays, and challenges of living with the disease every day, I'm thankful for the people who helped pave the way.

| 5 min read