The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
It took a lot of self-advocacy — and a lot of medical testing — before I received a diagnosis of cystic fibrosis-related metabolic syndrome. Fortunately, my parents supported me as I went from specialist to specialist and finally got my diagnosis.
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With more than 100 blog posts shared on the CF Community Blog this year, we've covered a range of topics from COVID-19 to Trikafta® and are looking back at some of your favorite posts. Take a look at the countdown to the most-read blog post below.
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President and CEO Michael Boyle shares an update on the Foundation's pledge to listen, learn, and take action against racism and discrimination.
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President and CEO Michael Boyle shares a message to CF Foundation staff on racism and discrimination.
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With nearly 90 blog posts shared on the CF Community Blog this year, we're taking a moment to look back at some of your favorite posts. Check out the countdown to the most-read blog post below.
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With nearly 120 blog posts shared on the CF Community Blog this year, we're taking a moment to look back at some of your favorite posts. Check out the countdown to the most-read blog post below.
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As the first contributor to the CF Community Blog, I was ecstatic when the Cystic Fibrosis Foundation reached out to me about authoring the 500th post. As I look back on all the stories the CF community has contributed over the past three years, I can't help but feel grateful for the opportunity for connection.
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In 2017, our most-read blog posts covered a variety of topics including parenthood, guilt, and loss. Check out the countdown below to see if your favorite post made the top 10 list!
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As we look forward to 2018, our President and CEO, Preston W. Campbell, III, M.D., shares a special holiday message to the cystic fibrosis community.
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As an adult with cystic fibrosis, I know just how powerful and creative the CF community can be. That's why I'm excited to announce the four 2017 Impact Grant awardees who are making a positive impact on the CF community.
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The CF Adult and Family Advisors (AFA) just got a fresh new look and name: Community Voice. By joining this group, people with cystic fibrosis and their family members have an active say in the Cystic Fibrosis Foundation's initiatives, driving improvements that benefit everyone impacted by CF.
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Three of our Impact Grant awardees tell us how the program has allowed them to make a difference.
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The Cystic Fibrosis Foundation has awarded the 2016 Impact Grants to individuals or organizations making a positive impact on the cystic fibrosis community.