The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Because I am immunocompromised after having a lung transplant, I still take extra precautions with COVID-19. I still feel awkward with turning down invitations and limiting my own guest list at gatherings, but I know my closest family and friends understand and do whatever they can to accommodate me.
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We’re spotlighting six authors who have written books based on their experiences with cystic fibrosis. Check out what writing about CF has meant for them, and what they hope their readers will learn from reading their stories.
Hannah Avery
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Coping with cystic fibrosis as a child led to depression. Creativity -- especially singing -- helped me find myself and led to my auditioning for The Voice Australia.
Maddie Grace Newton
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Watch our vlog to hear us discuss the upcoming film, Five Feet Apart.
Bethany Kokoski
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Hear about our homepage hero, Jeremy Weyandt, and his journey to a lung transplant.
Ashling Knight
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The Egan family, currently featured on the homepage of CFF.org, share more about their sassy little girl, how much their support system means to them, and what inspires them in the search for a cure for cystic fibrosis.
Ashling Knight
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The Woods family, currently featured on the homepage of CFF.org, share their favorite part of Great Strides walk day, their proudest moments as parents of a child with CF, and more.
Ashling Knight