As I assume my new role as president and CEO of the CF Foundation, I am humbled by all that this organization has achieved and am determined to continue our work toward the ultimate goal. Here are my thoughts as I take over the reins from my dear friend and colleague.
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Last week I travelled to D.C. to serve on a panel discussing the recent developments in precision medicine. I've got to say, it was pretty neat.
I advocate for my son who has cystic fibrosis by sharing his story to increase awareness. From new friends to legislators, I tell as many people as I can about this disease, how it changes your life, and how we are fighting this thing head on.
Because of the threat to my health caused by COVID-19, I had to give up my dream job as a nurse practitioner. Now I am asking for paid leave expansion.
President and CEO Michael Boyle shares an update on the Foundation's pledge to listen, learn, and take action against racism and discrimination.
Anything that slows down progress in research and the cure for this cystic fibrosis is my sworn enemy. Learn why the Improving Access to Clinical Trials Act (IACT) matters for our progress in the fight against CF and what you can do about it.
With nearly 90 blog posts shared on the CF Community Blog this year, we're taking a moment to look back at some of your favorite posts. Check out the countdown to the most-read blog post below.
With more than 100 blog posts shared on the CF Community Blog this year, we've covered a range of topics from COVID-19 to Trikafta® and are looking back at some of your favorite posts. Take a look at the countdown to the most-read blog post below.
Watch how teens advocated on behalf of their friends and family with cystic fibrosis on Capitol Hill during the 10th annual Teen Advocacy Day.
With nearly 120 blog posts shared on the CF Community Blog this year, we're taking a moment to look back at some of your favorite posts. Check out the countdown to the most-read blog post below.