A virtual program for current and recent college students who want to continue building new leadership, advocacy, and fundraising skills to make a difference on their campuses and beyond.
Site Search
By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our archived state and federal statements, letters, and regulatory comments from 2018–June 2023.
The Cystic Fibrosis Foundation believes in empowering our community to advocate for the needs of people with cystic fibrosis. During an election cycle, it's important to ask questions of candidates to understand how their positions would impact the CF community.
The CF Community Blog is all about sharing the experiences, reflections, and perspectives of the cystic fibrosis community.
Advocacy efforts to raise awareness about cystic fibrosis and ignite change don’t just happen on Capitol Hill during events like March on the Hill and Teen Advocacy Day. In fact, advocacy is a continuous effort that begins, and is highly effective, at home.
The Congressional Cystic Fibrosis Caucus unites bipartisan members from both chambers to raise awareness for CF; support CF research, drug discovery, and development; encourage collaboration between the public sector and private organizations; and support access to quality, affordable care for people living with CF.
We are excited that this spring, in Washington, DC, from March 13-16, 2024, there will be an enriched conference experience that combines March on the Hill (MOH) and our Volunteer Leadership Conference (VLC) into one extraordinary event for our leading volunteers with the theme of Hope in Action.
Designed with the CF community, national Community Conferences provide a virtual space to make connections, share experiences, and learn from others.
The Drive is the Cystic Fibrosis Foundation’s ultimate golf experience, held in the fall at renowned golf courses around the United States.
American Airlines Celebrity Ski presented by Citi and Mastercard is held at the Park Hyatt Beaver Creek ski in/ski out resort in Beaver Creek, Colorado.