The Success with Therapies Research Consortium helps the clinical study of interventions so people with cystic fibrosis can improve the consistency of their day-to-day management of their CF to optimize health outcomes and quality of life.
Site Search
CF MiniCon: Transplant is a virtual event for people with cystic fibrosis, their family members, and caregivers to learn about advanced lung disease and explore all stages of the transplant process.
CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF Foundation Patient Registry. The information is available in aggregate to the CF community each year through the Data Report, the Highlights Report, and the Care Center Finder.
Because transplant is such a complex process, most transplant centers require that candidates gather the necessary social support to help navigate the transplant process.
Gyms are wonderful places to exercise, but they can also be great places for germs. Germs can spread as far as six feet (two meters) through droplets released in the air by coughs or sneezes, and can remain in the air on tiny droplets -- ready to be breathed in.
If your child has cystic fibrosis, chances are you have some concerns about school fitness activities like physical education classes or school sports teams. Even though some people with CF have trouble breathing and tire easily, exercise can be especially important.
All too often, we begin an exercise program but quickly quit. Change doesn't happen all at once, nor does it happen at the same rate for different people. Starting at the right pace is important, and knowing your fitness level, or state of readiness, is key to finding the exercise plan that's right for you.
If you have cystic fibrosis-related
Most women with CF have normal hormonal function, reproductive tracts and sexual development. Despite this, there are common general and disease-specific sexual and reproductive health concerns that are common in CF.
Check in with your cystic fibrosis care team several months before your trip.